The Plan (As of Right Now)

Back end (heh heh) of a car in C-ville last week. Had to share the picture! Marshall and I met with my oncologist last week and the meeting actually went extremely well. I’ve made some decisions: I will have my surgery at UVA with the surgeon who did it before. I will wait until next year to have my surgery (which means we’ll be able to go on the trips we’ve already planned!) I will plan to have only chemo after my surgery. I will not have radiation. First, I need to share with you the unbelievable and unexpected ease […]

Meeting With My Oncologist Wednesday 9/11/19 at 8:25 a.m.

Tomorrow, I meet with my oncologist. Sadly, he was called away last week when his father died. Please keep him and his family in your prayers. Please keep me in your thoughts and prayers, too. There are so many decisions we are going to have to make soon. The first decision we’ve pretty much made: I will very likely be having surgery. We just need to decide which surgeon will do it, where I will have it, and when it will happen. I really like the surgeon at UVA who did my surgeon last time. When I met with him […]

Surgery is an option

Let me preface this post with sharing that I developed a bad cold yesterday and feel pretty stinky as I write this. Ain’t that just how it goes sometimes? Well, my novocaine trick didn’t work out as planned at the surgeon’s. Our appointment was for 1:30 and we didn’t get in to see him until about 4:00. My novocaine had long worn off, and my jaw was starting to really ache by the time the meeting actually happened. Not the best of beginnings. Also, we were supposed to meet with two doctors: my surgeon and my oncologist. But my oncologist […]

Meeting with the surgeon at UVA today

I want to thank you for all your thoughts, prayers, and good wishes. I can’t begin to convey how much they – and you all – mean to me. I need each and every prayer and appreciate each and every message, text, email, and call. I feel well supported and loved going into my meeting with the surgeon today. That is exactly what I need. Marshall is here at home and we are getting ready to drive over to UVA in a minute to meet with the surgeon who operated on me in 2016. His name is Ashok Asthagiri. My […]

Cancer is Back

Well, sadly, my gut was wrong. My oncologist says my brain cancer is growing back. We will have to decide on a course of treatment in the next few weeks, which probably (hopefully) won’t start until the first of the year to allow us to take a couple of trips we already have planned (including a trip celebrating Marshall’s and my 30th wedding anniversary in October). The doctor says there are four possibilities for treatment: Do nothing Have another surgery Have radiation + chemo Have chemo by itself Doing nothing (at least for very long) probably isn’t the best idea […]

MRI Today, Oncology Tomorrow – A Little Earlier than Expected

So, I’ve not been posting recently – overall, I’ve been enjoying a pretty great summer:) The highlight was a two-week girls’ road trip to Iowa for Hannah and me. Hannah had been accepted into the Young Writers Program at the University of Iowa (a fine, fine program I might add) where she spent two weeks in July with other young writers, led by graduates of the renowned Iowa MFA program. So now she probably knows more than I do about magical realism. (Okay, so that wouldn’t take much.) We took two weeks to drive all the way to Iowa, stopping to […]

To the Universe

I feel like a wonder today. I can’t help it, I just do. I’m so happy and filled with this bubble-up kind of joy, so much so that I suddenly could hear the words of music effervescing in my mind. Suddenly, I was singing: Doctors have come from distant cities, just to see me Stand over my bed, disbelieving what they’re seeing They say I must be one of the wonders Of God’s own creation And as far as they see, they can offer No explanation Newspapers ask intimate questions, want confessions They reach into my head to steal, the […]

Miracles

No beating around the bush for me – the news from Charlottesville tonight is great! There has been no new growth of the tumor since my last MRI (September 2018)! Wooooooooot! To say I am thrilled would be an understatement. I am so, so happy and grateful. It’s yet another miracle in my life. I’m learning to believe in them. Really. Here’s my story about miracles. I usually take time to prepare myself for my oncology appointments before I go to them. Often, I’ll do some reading about oligodendroglioma tumors and new treatment options. I try to read both actual […]

My Most Recent MRI Results – Not What We’d Hoped

I haven’t blogged in a long time. Here’s the reason I’ve been quiet: in the past six months I’ve been relishing my ability to live a pretty “normal” life. Until my most recent MRI about a month ago, I hadn’t really been to the doctor for a good six months. In fact, I’ve been feeling pretty dang good since going on the ketogenic diet last November – it’s totally changed my life, giving me enough energy to go from eight in the morning to ten (or even eleven) at night. No, I’m not the energizer bunny, but I’ve really been […]

Balance: On Doing More

So, I haven’t blogged here for a long time.  I am very happy to tell you the reason is a very good one — I’ve been feeling a LOT better, so I’ve been getting out there in the world again! Last November, I had a little scare with my MRI —  a “minimal change” that reminded me all too clearly that my cancer is “supposed” to come back at some point. Frankly, it was a huge wake up call to me that life is short that time moves fast. As a result of this not-so-gentle reminder, I started thinking about […]

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