Big 50!

Having brain cancer has had a wonderful way of changing my perspective on just about everything, including turning 50 today.  When I turned 30 I was sad to be getting older.  Today, I have no wish to be young again.  I harbor little nostalgia for years gone by.  I have only immense gratitude for this day, for the privilege of turning 50, for being alive. I am very, very happy to be 50.  Bring it on, y’all!

Epilepsy?

Two weeks ago, a neurologist – an epilepsy specialist – told me she thinks I have epilepsy. I have to admit, it was a pretty stunning thing to hear. After all, I’ve never lost consciousness due to a seizure, and I have had only one real event that I’d even classify as seizure-like – and that was the night that landed me in the hospital when I was diagnosed with brain cancer. It would be easy to try to dismiss what the epilepsy doctor told me – after all, the whole reason I went to see her in the first […]

I Am Flu Slayer. Hear Me Roar!

Let’s recite it together: “Please, friend, kick me when I’m down.” As if having brain cancer and secondary adrenal insufficiency isn’t enough, I go and get the flu. I haven’t had the flu in years.  But it decided to show up last weekend, disguised at first as a head cold.  A few days later, the fever, chills, and aches came on.  I thought I was really in for it – people die of the flu, you know.  And these days I have a ton of trouble just trying to get rid of the sniffles.  I was worried about what I […]

Abbey Normal

They told me that my last EEG was slightly off. My first response to this news was, frankly, to be a bit offended. What do you mean my brain is “slightly off”?  How judgmental of you, Medical Establishment. You’re not exactly the epitome of normality either, I want you to know. Actually, “slightly off” wasn’t the technical phrase they used. The technical phrase was something to the effect that I had a couple “spike and slow curve” weirdnesses (“weirdnesses” is the technical term) on my EEG reading. This could be a sign of seizure activity in my brain. Or it […]

Wired Again

I am having an EEG at UVA Hospital as I write this. Nothing is wrong, I’ve just asked my oncologists to help me get off my anti-seizure medication since I believe it contributes to my ongoing fatigue issues. I’m not sure my doctors were necessarily thrilled with the idea – after all, many doctors do like their medicines, and I have to admit they can come in handy sometimes – but I am grateful they are indulging me. I really want off these meds! But it comes at a cost.  They will have to taper me off the meds over […]

Post Trekkie Exhaustion!

That thingamabob in Hannah’s hands is called a bat’leth.  It is a Klingon fighting weapon.  Who knew?  Our daughter, that’s who!  In fact, Hannah was interviewed on the SciFi Channel at the convention: During the interview, they asked Hannah Star Trek trivia questions – and no easy ones as far as I was concerned. She got all but one correct and won a piece of Pez for her efforts!  Could a parent ever be more happy, proud, and profoundly tickled? I don’t think so!  Hannah loved every moment of her 13th birthday present, and it is a trip we will […]

The Slaytons Go To NYC Star Trek Convention!

Well, if you ever told me I’d ever be going to a Star Trek convention I would not have believed you. Not that I don’t like Star Trek – I do – but … but … Our daughter REALLY likes it.  Like, a LOT.  Going to the convention is our present to her for her for her 13th birthday, which is tomorrow – the day the convention starts.  And, although I blush to admit this, we went ahead and bought the VIP tickets.   Really?  Yes, really.   What can I say, except having brain cancer has made me a […]

Bottom Line: MRI Results Are Great! The short version: the MRI last week showed that there is no new visible growth of the tumor.  Hooray! The long version is slightly more complicated. It took a day longer to get to that result than I expected.  Expectations are often such impediments to the happiness of the moment.  If I could better let go of my expectations I think I would be happier as I deal with what is actually happening.  I was told that I would get the MRI in the morning, the radiologist would read it, and we’d have the […]

Driving, Feeling Better & MRI Tomorrow

Well, it has been awhile since I posted last.  It’s because, as of July 17th, I’ve been allowed to drive again!  Oddly enough, I wasn’t biting at the bit to get back at it. The break, while often majorly inconvenient, also had its own special, slow-downy charm about it.  In many ways, not being able to drive was very relaxing.  But at other times I felt a bit like a hostage in my own house. I may have mentioned this before, but the technical, mechanical aspect of driving came back the moment I sat back down behind the wheel. It […]

Independence

  Happy Independence Day, a day late, from someone who is still pretty dang dependent on others. But that is changing, slowly.  Last week I went to see my oncologist to ask him to reduce my seizure medication (which I’d already reduced without permission – I am a bad patient, or bad at patience, or both!). After a good-natured but well-deserved scolding in which he reminded me that he needs to know exactly how much medicine I am taking at all times in case I happen to have a seizure, my awesome oncologist actually reduced my seizure medication even more! I […]

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