Surgery is an option

Let me preface this post with sharing that I developed a bad cold yesterday and feel pretty stinky as I write this. Ain’t that just how it goes sometimes? Well, my novocaine trick didn’t work out as planned at the surgeon’s. Our appointment was for 1:30 and we didn’t get in to see him until about 4:00. My novocaine had long worn off, and my jaw was starting to really ache by the time the meeting actually happened. Not the best of beginnings. Also, we were supposed to meet with two doctors: my surgeon and my oncologist. But my oncologist […]

Meeting with the surgeon at UVA today

I want to thank you for all your thoughts, prayers, and good wishes. I can’t begin to convey how much they – and you all – mean to me. I need each and every prayer and appreciate each and every message, text, email, and call. I feel well supported and loved going into my meeting with the surgeon today. That is exactly what I need. Marshall is here at home and we are getting ready to drive over to UVA in a minute to meet with the surgeon who operated on me in 2016. His name is Ashok Asthagiri. My […]

Cancer is Back

Well, sadly, my gut was wrong. My oncologist says my brain cancer is growing back. We will have to decide on a course of treatment in the next few weeks, which probably (hopefully) won’t start until the first of the year to allow us to take a couple of trips we already have planned (including a trip celebrating Marshall’s and my 30th wedding anniversary in October). The doctor says there are four possibilities for treatment: Do nothing Have another surgery Have radiation + chemo Have chemo by itself Doing nothing (at least for very long) probably isn’t the best idea […]

MRI Today, Oncology Tomorrow – A Little Earlier than Expected

So, I’ve not been posting recently – overall, I’ve been enjoying a pretty great summer:) The highlight was a two-week girls’ road trip to Iowa for Hannah and me. Hannah had been accepted into the Young Writers Program at the University of Iowa (a fine, fine program I might add) where she spent two weeks in July with other young writers, led by graduates of the renowned Iowa MFA program. So now she probably knows more than I do about magical realism. (Okay, so that wouldn’t take much.) We took two weeks to drive all the way to Iowa, stopping to […]

To the Universe

I feel like a wonder today. I can’t help it, I just do. I’m so happy and filled with this bubble-up kind of joy, so much so that I suddenly could hear the words of music effervescing in my mind. Suddenly, I was singing: Doctors have come from distant cities, just to see me Stand over my bed, disbelieving what they’re seeing They say I must be one of the wonders Of God’s own creation And as far as they see, they can offer No explanation Newspapers ask intimate questions, want confessions They reach into my head to steal, the […]

My Most Recent MRI Results – Not What We’d Hoped

I haven’t blogged in a long time. Here’s the reason I’ve been quiet: in the past six months I’ve been relishing my ability to live a pretty “normal” life. Until my most recent MRI about a month ago, I hadn’t really been to the doctor for a good six months. In fact, I’ve been feeling pretty dang good since going on the ketogenic diet last November – it’s totally changed my life, giving me enough energy to go from eight in the morning to ten (or even eleven) at night. No, I’m not the energizer bunny, but I’ve really been […]

Balance: On Doing More

So, I haven’t blogged here for a long time.  I am very happy to tell you the reason is a very good one — I’ve been feeling a LOT better, so I’ve been getting out there in the world again! Last November, I had a little scare with my MRI —  a “minimal change” that reminded me all too clearly that my cancer is “supposed” to come back at some point. Frankly, it was a huge wake up call to me that life is short that time moves fast. As a result of this not-so-gentle reminder, I started thinking about […]

So, it’s been a long time

I haven’t posted in awhile.  I guess it’s because I’ve been out there “living my life.”  This is a good thing. I’ve been to New York for vacation this summer, where I walked a slow five miles in the heat.  And I’ve been to Arizona for a business trip with Marshall.  And I just got back from Florida for Thanksgiving with my family.  The business trip went well.  New York and Florida were home exchanges, and both were really amazing! In between, I’ve been up and down energy-wise.  Sometimes I feel pretty good.  Other times I feel pretty tired.  I’ve […]

I’ve Been Asked to Speak at the Indivisible Health Care Rally Tonight – Please Come!

I’m sorry I haven’t blogged for so long. My pretty decent excuse: I’ve been seriously considering running for Congress in 2018. Why?  Because everyone seems to remember the woman with brain cancer who would lose her health insurance if any of the recent health insurance bills become law.  I’d like to use my brain cancer (and my brain, too) to effect good in the world.  Becoming a Member of Congress seemed like a good way of doing this. But I have decided not to run.  More on why later, but for now let’s just say – it’s all about money. Still, I […]

Proposed Health Care Amendment Will Bankrupt Small Business Owners

NY Times Article – The Rest of the Story My picture was in the New York Times yesterday as part of an article outlining the real world effects of the healthcare bill that is currently up for debate in the House of Representatives; the bill may go up for a vote today, Thursday, May 4th. Here’s the rest of the story that the Times didn’t report: I was diagnosed with brain cancer in January, 2016. Our family had (and still has) insurance through the Affordable Health Care Act (ACA), otherwise known as Obamacare.  My husband, Marshall, is a solo attorney – […]

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