Two weeks ago, a neurologist – an epilepsy specialist – told me she thinks I have epilepsy. I have to admit, it was a pretty stunning thing to hear. After all, I’ve never lost consciousness due to a seizure, and I have had only one real event that I’d even classify as seizure-like – and that was the night that landed me in the hospital when I was diagnosed with brain cancer. It would be easy to try to dismiss what the epilepsy doctor told me – after all, the whole reason I went to see her in the first […]
I emailed my endocrinologist on Monday, telling him I’d really like to get off the steroids as soon as possible. So as of this past Monday, with his blessing, I have gone down from 15 mg of hydrocortisone to 12.5 mg each day. Until today, I was feeling pretty good. Today, I’ve been tired since I woke up. But fatigue is a common symptom of weaning off steroids, so I don’t think it’s any big deal. I am currently reading The Tao of Pooh by Benjamin Hoff. It’s pretty good reading for someone with cancer, I think. The chapter “Bisy […]
An Unexpected Twist on My Unexpected Journey. Woke up feeling bad – faint with muscles twitching. Very similar to when I first went into the emergency room when I was diagnosed. Scary. Marshall took me to UVA ER. Possible seizure. CT scan shows no brain bleed, which is good news. Most labs are normal. It’s 12:50 pm and we are still at the ER. I’m not feeling as bad as this morning, but not feeling very good either. Please keep me in your thoughts and prayers.
It was really great to get out of the house! Wow, was it ever good to get out of the house, to get out of the “recovering from cancer routine” at home, and to get out of my comfort zone a bit! The whole family needed a vacation after all that has happened since my diagnosis in January. It was great to just leave it all behind for awhile. The ship was just beautiful! And the weather (for the most part) and scenery were terrific. And there were lots of great things to do, like go on a semi-submarine ride […]