They told me that my last EEG was slightly off. My first response to this news was, frankly, to be a bit offended. What do you mean my brain is “slightly off”? How judgmental of you, Medical Establishment. You’re not exactly the epitome of normality either, I want you to know. Actually, “slightly off” wasn’t the technical phrase they used. The technical phrase was something to the effect that I had a couple “spike and slow curve” weirdnesses (“weirdnesses” is the technical term) on my EEG reading. This could be a sign of seizure activity in my brain. Or it […]
I made an unexpected visit to the UVA Emergency Room yesterday. I thought I was having another seizure. I’d woken up feeling horrible – like I was going to pass out. My muscles were twitching. I felt spacey and very tired. Scariest of all, I had pressure and twitching on my craniotomy scar, and my face looked a bit puffier (I didn’t think that was possible – but it was). We were afraid it might be a brain bleed. Marshall called my oncologist’s office and she suggested I take an ambulance to the emergency room. So Marshall called 911 and […]
An Unexpected Twist on My Unexpected Journey. Woke up feeling bad – faint with muscles twitching. Very similar to when I first went into the emergency room when I was diagnosed. Scary. Marshall took me to UVA ER. Possible seizure. CT scan shows no brain bleed, which is good news. Most labs are normal. It’s 12:50 pm and we are still at the ER. I’m not feeling as bad as this morning, but not feeling very good either. Please keep me in your thoughts and prayers.