The Plan (As of Right Now)

Back end (heh heh) of a car in C-ville last week. Had to share the picture! Marshall and I met with my oncologist last week and the meeting actually went extremely well. I’ve made some decisions: I will have my surgery at UVA with the surgeon who did it before. I will wait until next year to have my surgery (which means we’ll be able to go on the trips we’ve already planned!) I will plan to have only chemo after my surgery. I will not have radiation. First, I need to share with you the unbelievable and unexpected ease […]

Meeting With My Oncologist Wednesday 9/11/19 at 8:25 a.m.

Tomorrow, I meet with my oncologist. Sadly, he was called away last week when his father died. Please keep him and his family in your prayers. Please keep me in your thoughts and prayers, too. There are so many decisions we are going to have to make soon. The first decision we’ve pretty much made: I will very likely be having surgery. We just need to decide which surgeon will do it, where I will have it, and when it will happen. I really like the surgeon at UVA who did my surgeon last time. When I met with him […]

Miracles

No beating around the bush for me – the news from Charlottesville tonight is great! There has been no new growth of the tumor since my last MRI (September 2018)! Wooooooooot! To say I am thrilled would be an understatement. I am so, so happy and grateful. It’s yet another miracle in my life. I’m learning to believe in them. Really. Here’s my story about miracles. I usually take time to prepare myself for my oncology appointments before I go to them. Often, I’ll do some reading about oligodendroglioma tumors and new treatment options. I try to read both actual […]

So, it’s been a long time

I haven’t posted in awhile.  I guess it’s because I’ve been out there “living my life.”  This is a good thing. I’ve been to New York for vacation this summer, where I walked a slow five miles in the heat.  And I’ve been to Arizona for a business trip with Marshall.  And I just got back from Florida for Thanksgiving with my family.  The business trip went well.  New York and Florida were home exchanges, and both were really amazing! In between, I’ve been up and down energy-wise.  Sometimes I feel pretty good.  Other times I feel pretty tired.  I’ve […]

Reframing the Language of Cancer

I’ve been thinking for a long time about the language, labels, and metaphors that surround having brain – or any other kind of – cancer. In particular, I’ve been thinking about how I have consistently been told that I am fighting or battling cancer and that I am now a cancer survivor. Fighting. Battling. Surviving. Personally, I don’t identify with any of these words.  Why? All of them are inherently violent, reminiscent of the war against cancer that I am supposed to be involved in.  The problem with this is that I don’t want to live my remaining days engaged […]

Epilepsy?

Two weeks ago, a neurologist – an epilepsy specialist – told me she thinks I have epilepsy. I have to admit, it was a pretty stunning thing to hear. After all, I’ve never lost consciousness due to a seizure, and I have had only one real event that I’d even classify as seizure-like – and that was the night that landed me in the hospital when I was diagnosed with brain cancer. It would be easy to try to dismiss what the epilepsy doctor told me – after all, the whole reason I went to see her in the first […]

My First Picture Book! Snowball Moon Coming September 2017!

Well, I’ve been sitting on this very exciting news for quite a while.  I’m not sure why I have waited to spill the beans.  Normally, I would be the first to tell the world about me having a new book coming out.  Especially since it’s a picture book, a market I’ve been trying to break into for many years. Snowball Moon was acquired by Little Bee Books this past summer, and I’ve been “allowed” to tell about it for a number of months now.  I guess keeping the news to myself reflects how deeply tired I’ve been over the last […]

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