My Unexpected Journey Blog - Page 2 of 6

Epilepsy?

Feb 23, 201714 CommentsBrain Tumor, Cancer Milestones, Epilepsy, Keppra, MRI, Oncologist Visits, Seizures and Brain Tumors, Side Effects of Medications, UncategorizedCancer Milestones, Children's Author Brain Cancer, epilepsy, Fran Cannon Slayton, Keppra, MRI, oligodendroglioma, Scanxiety, Seizures and Brain Tumors, Side Effects of Steroids, Snowball Moon Author

Two weeks ago, a neurologist – an epilepsy specialist – told me she thinks I have epilepsy. I have to admit, it was a pretty stunning thing to hear. After all, I’ve never lost consciousness due to a seizure, and I have had only one real event that I’d even classify as seizure-like – and that was the night that landed me in the hospital when I was diagnosed with brain cancer. It would be easy to try to dismiss what the epilepsy doctor told me – after all, the whole reason I went to see her in the first […]

My First Picture Book! Snowball Moon Coming September 2017!

Feb 3, 20178 CommentsBrain Tumor, Children's Books, FatigueChildren's Author Brain Cancer, Fran Cannon Slayton, Snowball Moon

Well, I’ve been sitting on this very exciting news for quite a while. I’m not sure why I have waited to spill the beans. Normally, I would be the first to tell the world about me having a new book coming out. Especially since it’s a picture book, a market I’ve been trying to break into for many years. Snowball Moon was acquired by Little Bee Books this past summer, and I’ve been “allowed” to tell about it for a number of months now. I guess keeping the news to myself reflects how deeply tired I’ve been over the last […]

I Am Flu Slayer. Hear Me Roar!

Feb 3, 2017Cancer Milestones, Infection, UncategorizedCancer and Flu, Flu, Immune System and Cancer

Let’s recite it together: “Please, friend, kick me when I’m down.” As if having brain cancer and secondary adrenal insufficiency isn’t enough, I go and get the flu. I haven’t had the flu in years. But it decided to show up last weekend, disguised at first as a head cold. A few days later, the fever, chills, and aches came on. I thought I was really in for it – people die of the flu, you know. And these days I have a ton of trouble just trying to get rid of the sniffles. I was worried about what I […]

Abbey Normal

Jan 20, 201712 CommentsFatigue, Hospital Visits, Infection, Keppra, Oncologist Visits, Seizures and Brain Tumors, Side Effects of Medications, Uncategorized, UTIAbnormal EEG, EEG, Keppra, Sleep-deprived EEG

They told me that my last EEG was slightly off. My first response to this news was, frankly, to be a bit offended. What do you mean my brain is “slightly off”? How judgmental of you, Medical Establishment. You’re not exactly the epitome of normality either, I want you to know. Actually, “slightly off” wasn’t the technical phrase they used. The technical phrase was something to the effect that I had a couple “spike and slow curve” weirdnesses (“weirdnesses” is the technical term) on my EEG reading. This could be a sign of seizure activity in my brain. Or it […]

Wired Again

Dec 9, 201615 CommentsUncategorized

I am having an EEG at UVA Hospital as I write this. Nothing is wrong, I’ve just asked my oncologists to help me get off my anti-seizure medication since I believe it contributes to my ongoing fatigue issues. I’m not sure my doctors were necessarily thrilled with the idea – after all, many doctors do like their medicines, and I have to admit they can come in handy sometimes – but I am grateful they are indulging me. I really want off these meds! But it comes at a cost. They will have to taper me off the meds over […]

Of Star Trek, Steroids, Stadiums, and Sanity…

Oct 28, 20163 CommentsFatigue, Infection, Steroids, Tapering Steroids, Urinary Tract Infection, UTIBeing Tired and Cancer, Brain Cancer, Fatigue, Fatigue and Cancer, Frustration and Cancer, Patience

I have not posted for almost two months now. I keep thinking I am just a few days away from feeling “normal,” and I delay posting until then. But normal never seems to quite get here. Sigh.Star TrekThe Star Trek convention in New York City really did wear me out. I came home utterly drained and with another infection, but very grateful and happy that I’d had enough energy to complete the trip and participate in it pretty well. It was fun and absolutely worth the effort. But it took me a round of antibiotics and a couple of weeks with my feet […]

Post Trekkie Exhaustion!

Sep 14, 20168 CommentsUncategorized

That thingamabob in Hannah’s hands is called a bat’leth. It is a Klingon fighting weapon. Who knew? Our daughter, that’s who! In fact, Hannah was interviewed on the SciFi Channel at the convention: During the interview, they asked Hannah Star Trek trivia questions – and no easy ones as far as I was concerned. She got all but one correct and won a piece of Pez for her efforts! Could a parent ever be more happy, proud, and profoundly tickled? I don’t think so! Hannah loved every moment of her 13th birthday present, and it is a trip we will […]

The Slaytons Go To NYC Star Trek Convention!

Sep 1, 20164 CommentsUncategorized

Well, if you ever told me I’d ever be going to a Star Trek convention I would not have believed you. Not that I don’t like Star Trek – I do – but … but … Our daughter REALLY likes it. Like, a LOT. Going to the convention is our present to her for her for her 13th birthday, which is tomorrow – the day the convention starts. And, although I blush to admit this, we went ahead and bought the VIP tickets. Really? Yes, really. What can I say, except having brain cancer has made me a […]

Aug 23, 201612 CommentsUncategorizedCancer assumptions, Cancer MRI Results, Children's Author Brain Cancer, Follow up, Fran Cannon Slayton Brain Cancer, Fran Cannon Slayton Little Bee Books, Fran Cannon Slayton Snowball Moon, Fran Cannon Slayton When the Whistle Blows, MRI, MRI Results, Scanxiety

Bottom Line: MRI Results Are Great! The short version: the MRI last week showed that there is no new visible growth of the tumor. Hooray! The long version is slightly more complicated. It took a day longer to get to that result than I expected. Expectations are often such impediments to the happiness of the moment. If I could better let go of my expectations I think I would be happier as I deal with what is actually happening. I was told that I would get the MRI in the morning, the radiologist would read it, and we’d have the […]

Driving, Feeling Better & MRI Tomorrow

Aug 15, 201618 CommentsUncategorized

Well, it has been awhile since I posted last. It’s because, as of July 17th, I’ve been allowed to drive again! Oddly enough, I wasn’t biting at the bit to get back at it. The break, while often majorly inconvenient, also had its own special, slow-downy charm about it. In many ways, not being able to drive was very relaxing. But at other times I felt a bit like a hostage in my own house. I may have mentioned this before, but the technical, mechanical aspect of driving came back the moment I sat back down behind the wheel. It […]