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I want to thank you for all your thoughts, prayers, and good wishes. I can’t begin to convey how much they – and you all – mean to me. I need each and every prayer and appreciate each and every message, text, email, and call. I feel well supported and loved going into my meeting with the surgeon today. That is exactly what I need.

Marshall is here at home and we are getting ready to drive over to UVA in a minute to meet with the surgeon who operated on me in 2016. His name is Ashok Asthagiri. My understanding is that he will be able to tell us whether he thinks the tumor is operable, and if so, what kind of effect(s) surgery might have on my cognition.

Marshall just asked my what I hoped the meeting would hold for us.

I hope that the tumor is operable, because as much as I would like to avoid another awake brain surgery, I think it is is probably my best bet. I did well with the first one, so I am inclined to think I would do well with a second. (I say this, but to be 100% candid, I really would like to not go through it again. Big yikes.)

I also hope that the effect on my cognition will be negligible or non-existent. This is a big hope and a big question, as far as I am concerned. It will be a huge piece of information to digest and incorporate into our decision-making.

So, I wanted to share that I did something kind of not-well-thought-through this morning. I had scheduled a dentist appointment at 10:00 this morning to get a crown re-done. I thought it would be no big deal and might keep my mind off my appointment with the surgeon, so I kept the appointment rather than re-scheduling. But I have been in the dentist’s chair for solid two hours this morning. It went as well as it could go, I think, (getting a numbing shot in the jaw seems like no big deal at all after having had brain surgery:) but now half of my mouth and tongue is totally numb. I can hardly speak, and I have the constant feeling like I am drooling out the right side of my mouth. ¬†Perhaps I actually am – I can’t tell without a mirror.

Surely, drooling will will look like a bad neurological sign to my brain surgeon.

Ah well. Perhaps it will add some levity to an otherwise angst-provoking meeting.

We are leaving now for the hospital. Please keep us in your thoughts and prayers. More soon.


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Maria (Gapinski) CunninghamTammieFranLisa LewisKathleen MAdams Recent comment authors
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Maria (Gapinski) Cunningham
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Maria (Gapinski) Cunningham

Dear Fran, I will keep you in my prayers.

Tammie
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Tammie

Prayers most definitely continue. Good luck with the drooling!

Lisa Lewis
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Lisa Lewis

O.k., so I have to apologize for laughing, but the image of you drooling because of the novocaine and the neurologist interpreting it wrong made me giggle. I’ve been thinking about you each day. I hope your appointment went well..

Kathleen MAdams
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Kathleen MAdams

Thinking of you and sending strength. May you be surrounded by the love of family and friends as you navigate this process.

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