Epilepsy?

Two weeks ago, a neurologist – an epilepsy specialist – told me she thinks I have epilepsy. I have to admit, it was a pretty stunning thing to hear. After all, I’ve never lost consciousness due to a seizure, and I have had only one real event that I’d even classify as seizure-like – and that was the night that landed me in the hospital when I was diagnosed with brain cancer. It would be easy to try to dismiss what the epilepsy doctor told me – after all, the whole reason I went to see her in the first […]

Abbey Normal

They told me that my last EEG was slightly off. My first response to this news was, frankly, to be a bit offended. What do you mean my brain is “slightly off”?  How judgmental of you, Medical Establishment. You’re not exactly the epitome of normality either, I want you to know. Actually, “slightly off” wasn’t the technical phrase they used. The technical phrase was something to the effect that I had a couple “spike and slow curve” weirdnesses (“weirdnesses” is the technical term) on my EEG reading. This could be a sign of seizure activity in my brain. Or it […]

Ups and Downs

Ups. One of the BIG ups in my life is that since my brain tumor was removed, the hip and shoulder problems that I’ve dealt for years are, very slowly, getting better!  I didn’t fully realize how bad things were until my muscles started unclenching and untwisting and loosening.  What a difference!  Frankly, it’s a little disconcerting at times.  These muscles have been clamped down for so long, it feels scary for them finally to let go.  Joints are clunking into places they haven’t been for years.  It feels like my rear end might fall off.  But it also feels […]

Oncology Visit and MRI: When Black and White Becomes Gray

It has taken me awhile to mentally and emotionally process the results of last week’s 3-month follow up Oncology visit and MRI.  I don’t know what I was expecting – clear answers, perhaps?  But I’m getting the feeling I’m not in Kansas anymore, Toto.  Clear answers seem few and far between on this unexpected journey of mine. The Bottom Line:  My MRI Results. My MRI results on Wednesday were not bad, but they were not definitive.  (The more I read this sentence, the more amusing it becomes.  When is anything definitive?  Why did I once think anything was?) The MRI […]

Celebrating Feeling “Okay!”

Too Much Doom and Gloom Lately:  So Let’s Celebrate Feeling “Okay!” I felt okay all day yesterday!  And I’ve felt okay all day so far today!   YEAH BUDDY!!! We know how to celebrate around here. Meeting with Oncologist Tomorrow… Tomorrow (Wednesday) is my first three month follow up appointment with my oncologist.  As I mentioned a couple of days ago, one hugely positive byproduct of having to go to the emergency room last week was a “sneak peek” CT scan showing that there was no edema and no tumor regrowth.  I imagine we’ll hear more specific details tomorrow, but […]

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