I Am Flu Slayer. Hear Me Roar!

Let’s recite it together: “Please, friend, kick me when I’m down.” As if having brain cancer and secondary adrenal insufficiency isn’t enough, I go and get the flu. I haven’t had the flu in years.  But it decided to show up last weekend, disguised at first as a head cold.  A few days later, the fever, chills, and aches came on.  I thought I was really in for it – people die of the flu, you know.  And these days I have a ton of trouble just trying to get rid of the sniffles.  I was worried about what I […]

Abbey Normal

They told me that my last EEG was slightly off. My first response to this news was, frankly, to be a bit offended. What do you mean my brain is “slightly off”?  How judgmental of you, Medical Establishment. You’re not exactly the epitome of normality either, I want you to know. Actually, “slightly off” wasn’t the technical phrase they used. The technical phrase was something to the effect that I had a couple “spike and slow curve” weirdnesses (“weirdnesses” is the technical term) on my EEG reading. This could be a sign of seizure activity in my brain. Or it […]

Of Star Trek, Steroids, Stadiums, and Sanity…

I have not posted for almost two months now. I keep thinking I am just a few days away from feeling “normal,” and I delay posting until then. But normal never seems to quite get here.  Sigh. Star Trek The Star Trek convention in New York City really did wear me out. I came home utterly drained and with another infection, but very grateful and happy that I’d had enough energy to complete the trip and participate in it pretty well. It was fun and absolutely worth the effort. But it took me a round of antibiotics and a couple of weeks […]

Ups and Downs

Ups. One of the BIG ups in my life is that since my brain tumor was removed, the hip and shoulder problems that I’ve dealt for years are, very slowly, getting better!  I didn’t fully realize how bad things were until my muscles started unclenching and untwisting and loosening.  What a difference!  Frankly, it’s a little disconcerting at times.  These muscles have been clamped down for so long, it feels scary for them finally to let go.  Joints are clunking into places they haven’t been for years.  It feels like my rear end might fall off.  But it also feels […]

Kidney Ultrasound: The End of a Difficult Week

Let me just say this: Last week was pretty stressful.  I’m glad it’s over. Up until now I’ve been pretty good about keeping perspective.  But I readily admit: last week challenged me.  With a lingering UTI, a callback ultrasound after my mammogram, and a kidney ultrasound, it was a bit much.  I felt sick.  I was stressed.  I struggled to maintain as much positivity in my life as possible.  It was pretty hard. Kidney ultrasound: Rough process.  I had my kidney ultrasound on Thursday.  It was a rough process.  Not the ultrasound itself – that was easy.  And painless.  The […]

Infection and Insurance Update

Long story short: Infection is close to being totally clear. The long story is that over the weekend I kept having a low grade fever up to 99.8, even while taking a very strong antibiotic (Levoquin) and Tylenol.  I felt weak and horrible, and was worried about whether I would have to go to the hospital – fevers, even low ones, seem to make me more susceptible to passing out since my craniotomy. By Monday, after four days on the antibiotic, I still had this weird low grade temperature, on and off.  And I continued to feel horrible.  After receiving […]

Infections, Steroids, Mammogram Callback – Really?

Monday I felt good.  Then it went downhill. I took two long, slow walks this past Monday – it was the furthest I’d walked in months.  It felt great.   In fact, I felt so good that I forgot to take my 5 p.m. steroid dose until 9 p.m..  It would have kept me up if I’d taken it so late in the day, so I opted to skip it and then email my endocrinologist the following morning for instructions. My endocrinologist told me I could use this as an opportunity to try tapering down the steroid from 12.5 mg […]

Oncology Visit and MRI: When Black and White Becomes Gray

It has taken me awhile to mentally and emotionally process the results of last week’s 3-month follow up Oncology visit and MRI.  I don’t know what I was expecting – clear answers, perhaps?  But I’m getting the feeling I’m not in Kansas anymore, Toto.  Clear answers seem few and far between on this unexpected journey of mine. The Bottom Line:  My MRI Results. My MRI results on Wednesday were not bad, but they were not definitive.  (The more I read this sentence, the more amusing it becomes.  When is anything definitive?  Why did I once think anything was?) The MRI […]

Get Fran's Blog Updates Delivered Directly To Your Inbox
Stay In Touch
We don't share your email address with anyone. Ever.